****will be enclosed with pictures to CMC Main and corresponding individuals
To: Whom it May Concern
First of all, I want to explain that I am not an irrational or bitter person that thinks society owes me something. I think sometimes these kind of complaints can come off that way to others. My son, Alexander Crisp can not walk, talk, hold his head up, or eat or drink without assistance. He was diagnosed with Mitochondrial Disease at the age of 3 and is now 13 years old. Just recently we spent a very long 72 days at Levine Children's Hospital. And the last year and a half, we have come to Levine for infusions at your infusion clinic on the 5th floor. Each time I come, it is a struggle to get a handicap space. You have a designated handicap, oversized parking area for vans like mine. Each time I get access to the lot, I cross my fingers that there is one van space available. Normally there are just a couple of actual handicap equipped vans in there and the rest are filled with parking lot violators, and they are not oversized with tags. Many of them do not even have tags.
Getting in and out of my van is not easy. But I am fortunate that we even have this van. Because I have to fight really hard with the system just to get a vehicle like this. My husband is also in a wheelchair. He has hand controls on his own car. He's a quadriplegic. It is rare that he even gets a space in the parking deck that is handicap accessible. He normally ends up at the top of the deck and parks at the very end which is not so safe at night. But he has to park there so he doesn't get blocked in. He does not use the oversized lot because he's in a car. See for us, it is not convenience. We don't even have to have a space front and center.
I can not tell you the times I have complained to security, to Sherry who works downstairs in Levine, to Flay our favorite security guard, to the ticket collector at the gate, and to various other employees. This problem is really bad. The spaces are not enforced. I am enclosing some pictures from today. We had a doctors appointment in hematology at 10:30 today and then went to the bear of a parking deck to go to our 3.5 hour infusion at Levine at 1. The nice lady at the time at the cashier waved me into the lot for oversized handicap vehicles. She actually expects me. I got a great space. I let out my side entry lift in the no parking area and rolled Alex and his service dog, Camden, out of the van. I shook my head as I once again saw the ridiculous CHS staff golf cart parked in one of the only leftover handicap parking spaces. He parks there every single day. But this of course did not effect my day. That in itself should not be happening.
As I came out this evening at 4:45, someone had parked in the no parking area beside my side entry access van. I went up to a guy in the cashier booth at the parking deck and explained that I would like the car ticketed or towed. These were his exact words. "You'll have to wait till the cashier comes out of the building over there. It is her car." Well 8-10 minutes passed and she was coming across from rehab direction. She went into the parking booth. I waited 3 minutes. I was liviid. I yelled over at the woman. Remember I have a medically fragile child sitting in the middle of the parking deck, so I'm not going to walk over there and leave him. I told her she needed to move her car. She says "Im coming!" Then she says " I apologize, it was just temporary. I had to get to work." I pointed at my child. I said, "how can you enforce it if you abuse it yourself."
Well, let me tell you something....my child's disability is not temporary. It's a miracle he is even alive at the moment. Months ago the same woman parked in a handicap spot in the same lot with no tag. I found out it was hers because I complained once again at the cashier gate. I told her there was no place for me to drop my lift and she was taking up a van accessible spot because it was convenient. Yes, both times she has moved her car. But someone needs to do something about this. Today was horrid. I wanted to call the police. But I also have very limited time to wait with Alex in a parking deck. We had been there all day long. I'm obviously not the only one who has this problem. Your employees are the violators here and that is a really bad problem. And security does not enforce it enough. This woman worked today 11/15 at 5pm at the cashier booth. She needs to be addressed. And we will be coming in and out of that lot very often. So obviously this can't effect our visits there. But that reflected your hospital in the worst way today. This was ridiculous. Please help us secure spaces like this. And please have someone patrol the other spaces in the parking deck. There are just no words to describe how angry I was today. She has abused the handicap parking twice in front of me. It's like she has no idea.
Thank you for taking the time to read this and address my concerns. This should have never been an issue in the first place, especially in a hospital parking deck.
My friends son is disabled, in a wheelchair, & has a service dog. As they were leaving Levinson Children's Hospital, they came across this terrible driver, parked on the striped yellow lines, next to the handicap spot. It is such a struggle for my friend to get her son in the car when people park like this...